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SCUTIFERO , Marianna

Last name: SCUTIFERO

First name: Marianna

2016 (v1)

Publication

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Health-related quality of life and functional changes in DMD: A 12-month longitudinal cohort study

Messina, Sonia Vita, Gian Luca Sframeli, Maria

In Duchenne muscular dystrophy (DMD) little has been reported on the association between clinical outcome measures and patient health-related quality of life (HRQOL) tools. Our study evaluated the relationship between 12 month changes on the Generic Core Scales (GCS), the Multidimensional Fatigue Scale and the Neuromuscular Module of the...

Uploaded on: April 14, 2023
2015 (v1)

Publication

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Benefits of glucocorticoids in non-ambulant boys/men with Duchenne muscular dystrophy: A multicentric longitudinal study using the Performance of Upper Limb test

Pane, Marika Fanelli, Lavinia Mazzone, Elena Stacy

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Uploaded on: April 14, 2023
2018 (v1)

Publication

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Upper limb function in Duchenne muscular dystrophy: 24 month longitudinal data

Pane, Marika Coratti, Giorgia Brogna, Claudia

The aim of the study was to establish 24 month changes in upper limb function using a revised version of the performance of upper limb test (PUL 2.0) in a large cohort of ambulant and non-ambulant boys with Duchenne muscular dystrophy and to identify possible trajectories of progression. Of the 187 patients studied, 87 were ambulant (age range:...

Uploaded on: October 11, 2023